Thursday May 5 marks the Day of Celiac, but those who suffer from this intestinal condition still waiting for his reasons to celebrate. That’s why at the time, from 18, there will be a march that starts from the National Congress to Plaza de Mayo to demand the regulation of Law 26,588, enacted in December 2009 and expected to be applied by the Ministry of Health.
The rule states that the Public Works, Private Health Care Companies and other health workers provide to their members coverage of specific foods. In turn, points to the correct label all gluten-free products, the realization of campaigns on the disease, and assisting those who lack health coverage.
“Leading a gluten-free diet is the only treatment for celiac disease, but many patients drop out due to lack of resources,” said a lawyer Celina DocSalud.com Bo, an advocate of the law and mother of two children with the condition.
It explained that, eating a proper diet to avoid symptoms can cost four times more than a traditional diet and even the price of a bag of 200 grams Palmeritas becomes an eccentricity, as its price is about $ 45 .
“Celiac disease is a chronic disease with a single treatment: diet. However, medical coverage do not take it as such when they refuse to cover eligible breaths, forcing patients to file habeas corpus, “said Bo.
The lawyer acknowledged that, after years of struggle, failure proceeded: “The last sentence on OSDE recognized celiac disease and chronic and forced to cover 70% of the value of specific foods and not just manufactured and pre-meal, because the current lifestyle does not allow mothers to amass every time a child wants to eat a cookie. “
Bo stressed that “the lack of regulation should never be an impediment to the State to comply with the right to health.” Is that this disease, which damages the lining of the small intestine and prevents absorption of food, produce serious consequences if not treated. These include the loss of bone mass, repeated abortions, cancer of the colon and rectum, and small, among others.
However, these effects “are not known in a massive way, since there are no advertising campaigns,” said the lawyer. On the other hand said there is not a common consciousness to avoid cross contamination, in the case of celiac gluten respond to an edible food go to another because it was made a good practice when handling was developed.
As an example the lawyer said: “If you pollute a potato chip when used for cooking oil the same as that of a Milanese, intolerance occurs at large, and in five years, these oversights can have serious repercussions on the health of the patient” .
Moreover, Bo stressed that the legislation provides to subsidize Buenos Aires bars and restaurants including menus “fit celiac.” As expressed, this incentive can partially combat social implications of the disease, especially younger ones, “because the mental health of children also is affected by not being able to eat anything out, nor on the birthday.”
Regarding labels, companies that include “do on their own and sometimes also remove them.” In this regard, to ensure their appearance, the law “is not a capricious initiative, also guarantees the right to health, integrity and compliance information.
For útlimo, Bo said the march, which is named “Rules and” will be peaceful, and that “there is no intention to disturb or cut a street.” Said they will invite people to walk on the sides of roads with the aim of a claim to ensure mental and physical health of those with gluten intolerance is a priority at the end of the political agenda.
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